The First 24 Hours

In honor of Mother's Day I wanted to share a story...

G and I arrived at the hospital bright and early. We were there for the induction of our last child. We were giddy with anticipation and after the last several days we were finally excited to start this new adventure.

The days leading up to the induction had been nothing short of stressful. G had been at the hospital only 48 hours before the arrival of our son. My parents had taken our two oldest to stay with them 3 days prior to our original plan (they took them home on Friday evening when originally it had been scheduled for Monday). G spent the weekend in the hospital trying to recover from a month's long intestinal battle. He underwent blood work and tests to try to determine the problem. I spent the weekend driving between visiting him and my two children. My main concern was the health of my husband and my hope was I wouldn't deliver while he was being evaluated. Lucky for us, he was discharged on Sunday afternoon. My parents opted to keep the kids rather than bring them back to us so G could continue to recover.

He quickly bounced back so as we arrived back at the same hospital he had been treated in with the focus on the arrival of our last bundle of joy. Within a half an hour of arriving I was hooked up to Pitocin and my water was broken. We chatted with the our nurse, threw back and forth some baby names (we are so last minute) and joked with each other about the craziness of the last few days.

My contractions started fast and quick and within half hour of the induction drugs I was asking for my epidural. I was in a waiting line with three other moms. I was told I would have to wait due to one of them giving birth to her fifth child. They felt her labor would be quicker than my own so I waited some more, breathed through the contractions and prayed I wouldn't give birth during the wait. Finally I got relief and G opted for breakfast in the cafeteria. I was comfortable and sent him on his way.

I made a call to my friend and chatted with her for about 15 minutes when I noticed the monitor showing dips in the heart rate of my unborn child. Knowing this meant things were progressing I quickly got off the phone and called the nurse. Within minutes she had the stirrups up, called my OB-GYN and my husband was no where to be found. I made a quick call to him and told him to get his ass up here now the baby was coming.

Thankfully he walked in with the doctor and within 2 minutes the doctor announced, "It's a boy". It was a crazy fast delivery. I beat the lady who was on baby #5 and P was born at 9:10 am.

The nurse made an offhanded comment to our doctor that he looked a little blue in the face. The doctor took a quick look and felt it was bruising for such a quick delivery....

We quickly called my parents who were on their way with our two other children. Once I was moved out of L&D they came to visit us and our latest addition. It was FINALLY the moment I had been waiting for...my family together. Previous births had not worked out as I imagined. My firstborn, my parents had colds and my mom wouldn't hold R in fear of making her sick. Our second birth, my parents kept their distance once again because R had been sick and they didn't want to make E sick. So finally with the last we were all together and healthy and loving on the newest bundle. I was ecstatic.

Move forward 24 hours my mom was on her way to visit us. She had brought our first son over from her home so my husband could take him to his Mom's Day Out Program. She had spent the last 2 hours shopping for her second grandson. She was most likely parking the car as our children's pediatrician gave us the most devastating news. Our son was gravely ill and would need to be moved to the NICU within the hospital. We were told we could go into the nursery (you know the room all the babies go to with the glass window for you to peer in and see all the little bundles of newness). As we exited my room we were greeted by my mom. She was all smiles with a bag of goodies. She had no idea but within seconds of seeing my face she knew something was terribly wrong. I am not sure what I squeaked out but I imagine I said, "something is wrong with P" as tears flowed out of my eyes. She quickly dropped her bags in my room (I think...I don't really remember because I don't think she had them when we were escorted into the nursery).

We walked in and I was weaving back and forth. Only a couple hours before I had asked for some pain medication due to some pain I was having. The medication had set in and I had no real control of my body. My mom held me up with G as we stood in that room with the glass. I was a mess, unable to speak without gasping for air and wondering what was wrong. Our pediatrician made me sit down and she calmly explained who the nurses were looking over P. They ordered a wheelchair for me. The NICU nurses then wheeled P out of the nursery and I just sat in the chair watching him go... my mom held my hand. She listened to what we were being told and remained focused on me.

Finally my transportation arrived and we were allowed to go down to the NICU. We went through the hallways back through L&D where I had been only 24 hours earlier and we were ushered into a world we never imagined as big double doors of the NICU opened. All the while my mom was there.

At some point I gained some of my faculties, the drugs and shock were starting to wear off, and I realized someone needed to go pick up E from MDO. My mom, not knowing where it was but willing to go offered. My husband declined and they kept their original plan. He left the hospital and went to retrieve E while my mom and I watched the NICU continue to do tests on our son. I am not sure if at that point we realized it was heart issue... much of those first few hours were a blur. My mom held my hand and I continued to watch. My husband called once he arrived back in the hospital parking lot with our son. My mom left my side and went back down to resume her grandmother duties of taking care of my two oldest children.

During that time I remember how my mom remained calm, strong and never let on the gravity of the situation. She held my hand, told me to pray, argued with me about standing too much (I was angry about the wheelchair even though I had sea legs). She gave me tissues and never let on how excruciatingly difficult of a scene we were now a part of. She had to leave the bowels of the NICU and back into the sunshine to a car with a little 2 year old. She was going to need to put on a great face and drive 45 minutes home all the while her youngest grandson laid in the NICU. I simply cannot imagine.

My mom was with me on one of the most wonderful days of my life, the birth of my third child. And she was with me during the most horrendous days of my life. In 24 hours we experienced incredible joy and gut wrenching heart ache. All the while she held my hand, told me to be strong and reminded me I would get through this...

Since those events we talk a lot about what took place and our feelings. She is the one person who knows it from my perspective as a mother. Happy Mother's Day mom. Thank you so much for being with me. You were there to make my dream come true of a family hospital picture and you were with me during the most difficult time... all within 24 hours.

I love you!

What's all the fuss about

Dalai Lama for Halloween?

Today we (G, P and I) went to Nationwide Children's Hospital for P to have a minor procedure to remove a pyogenic granuloma from his right check. This little sucker appeared in September and at first I thought it might be a little baby acne. However after a few weeks I realized it was something else. After the holidays I had it examined by Dr. P who suggested removing it. We got it set up for February however due to an ice storm we postponed till today.

Now the week leading up to this procedure (requiring anesthesia) I started to freak out. What was I thinking putting my baby under for an elective procedure? Was I that vain (my reason for wanting it removed was partially cosmetic)? What if something horrific goes wrong from being put under? You name it I thought it. Lucky for me Dr. P's wife is a good friend of mine so she had him call me to calm my fears. I am sure he was slightly amused by my tangent.

So this morning we got up in the wee hour of the morning to make the trek down 71. Now I have been down this road since P's first surgery (his cardio check ups take place there) but it was surreal to be carrying in P in to be placed under so he could have a lesion cut off his face. G and I were quite calm, much like we were last April Fools Day. We joked with the nurses, no tears were shed and we carried him down to the OR doors (okay last time he was wheeled in a bed). We said our c-ya later and walked down the hall to the waiting area. The same hall and waiting area we went down and sat in 11.5 months ago. We checked in with the same surgery waiting room clerk, dropped our items in the same place and pulled out our electronics. We commented on the construction taking place and the changes. G ran to grab us some drinks and food and I settled into the recliner. I had the same calm feeling as I did when P was undergoing his open heart surgery. It was very much the same minus the time we waited (oh and the fact this was elective and the other was to save his life). After only 30 minutes, Dr. P came out to tell us he was all done, no issues. We hung out for another 20 minutes then we were called back to recovery. It was only 8:45 am! As we walked the hallways of recovery we could hear our screaming boy. No need to look for his room number we could hear him a mile away. He recovered quickly (little apple juice, a nap and we were discharged). And we walked right out as three. It was all good.

Thanks Dr. P for dealing with my antics last week and doing such a wonderful job. It looks great!

Playin' and Waitin'

Changed into something smaller and a pretty blue right before going in

Napping in recovery

Why we wanted it removed (when it bled it would gush)

Lots been going around here

March has come in like a lion with birthday celebrations, minor procedure for P and G's vacation. It has been a good month and I am so thankful. Just a few days ago G and I were recalling his hospital stay last year and how that kicked started what was the most stressful month of our lives. We are so grateful that this one has been filled with pure joy!

Short Changed

A favorite photo of one of my favorites!

My middle child just celebrated turning three today. There was no party, no cake, no favorite meal, no presents and no balloons. Instead, he spent it with yucky antibiotic and an inhaler. This comes as no big surprise as this is par for the course when it comes to my sweet blue eyed boy.

Every year he gets the short end of the stick when it comes to his birthday. His first birthday I opted not to have a big party. He had his mom and dad, sister and maternal grandparents bring in his birthday (his older sister had a grand first and his baby brother will be too). Then on the day of his first birthday he spent the second half with his first stomach bug. It was plain awful.

His second birthday wasn't much better although he wasn't sick. Once again he celebrated with his mom and dad, sister and maternal grandparents. However the entire day leading up to his mini celebration his dad spent in bed unable to play with him. His dad is his best buddy.

This year we do have a small party planned with friends and I am praying I won't need to cancel it. I am hoping my big boy starts to feel better so he can have his cake and eat it too, FINALLY.

His first birthday before he got sick!

Celebrating his second birthday!

Right of passage

Everyone of my kids has sat in these little yellow chairs and had themselves a blast at the water table. This last week was P's first time to sit in the water table. He enjoyed himself and was a soaking mess. I pulled some old pictures of the other two... I just can't believe how fast they grow.

Snip Snip

Shaggy needed a haircut! So we headed out with both boys to get trimmed up. We had a first-timer on our hands and he did great. We took lots of pictures but I realized once I reviewed them we didn't have one of the finished product. I am so glad we took advantage of their first timer package which included a picture they took when he was done. There were no tears just trying to check out Elmo on the tv screen.

Put a Fork in It

All pictures: Zoo December 31, 2010

Alas 2010 is almost over and as much as I feel relieve to take the calendar off the wall I can't help but reflect on this past year and all that I went through (or should I say all that went on around me)!
The bookends of this year were quiet not giving way to all the goriness that was in the middle. 2010 started uneventful but by the end of January the stories that were about to unfold felt more like punches to the gut (literally for my husband) that kept coming month after month. I don't need to regurgitate all the negatives but I think before the year is up I need to highlight all the positives for myself otherwise I may always look at 2010 with disdain. So in no particular order...

• Our second son, your smile lights up a room. You have completed our family perfectly. You unknowingly taught so many life lessons. To say you are amazing is an understatement.
  
• My incredible husband, you had so many challenges and yet your personality and 1/2 glass full attitude stayed intact. I am inspired by you.
• My beautiful daughter, you grew up so much this past year. You still have much of your innocence which I am grateful.
  
• My oldest son who kept the giggles rolling. You too have grown up a lot and you have become more charming.
• All my siblings (direct and in-laws) showed us they could roll up their sleeves and help out when the time called. I have never been more proud to be part of this family.
• Fantastic parents! My folks went through so much themselves this year but they truly were life support for us in the spring. And although at the end of 2009 and in the spring of 2010 we lost my in-laws we feel we have angels on our shoulders watching over us.
• Friends, old and new came out to rally around us. It was an amazing gift to witness.

And then there were the events some big and some seemingly small that brought smiles. The birth of our son, playing games as a family, the love E has for YoGabbaGabba, clown night on our family vacation, Disneyworld, witnessing our nephews wedding, Ry's ever growing hair, the Start! Heart Walk, birthdays... the list goes on.

So as much as I may say 2010 sucked, it really didn't. I got some of the best gifts a girl could ask for this year. My family is complete, a grown appreciation for what really matters and a perspective on life that allows me to enjoy the mundane (although I will still complain about it).

Goodbye 2010 HELLO 2011!

We are all human

Last night I read a question posted on FB. It was posted from a group I am a member of (It's My Heart) and here it is:


Only someone who is personally dealing with or has dealt with CHD truly knows how it feels. Give insight to people on the outside. What are some things family/friends said or did that were helpful/not helpful, not to hear/hurtful, or any advice for someone wanting to help but doesn't know how.

Now I read through the comments and was somewhat surprised because the typical responses were "think before you speak", "never ask the the mother if she caused it", "don't tell us everything is going to be fine", etc. I wasn't surprised by the comments themselves but how I didn't feel that way or didn't experience it the same. I opted in not posting a comment because I felt I would offend folks.

First let me say that although many of my friends haven't directly experienced something similar however I feel that they all had their own experience with P's diagnosis because of their proximity to me. I sometimes think when you are in the bubble of the hospital that you think those around you aren't grieving along with you (outside of the hospital walls). If they are true friends they too are trying to figure out how to process the information. It affects friends because they care about you and your. If you take yourselves out of your bubble you realize your friends/ family are just trying to be helpful and never intentionally hurtful. If the shoe were on the other foot would you know what to say, how to behave at all times? I think not. You must remember that everyone has their heart in the right place even if they cannot directly relate to your situation.

Recently I had a friend who's child had to undergo elective minor surgery. My friend was filled with worry (as she should be, this is her story happening to her child) and when I tried to reassure her (as any good friend would do) she reminded me that "compared to what you went through this must seem like nothing". Which is true but not really. It's true for the obvious, my son's surgery was to save his life and his situation was dire but the not really stems from the fact that as a mother any surgery is scary for your child. I sometimes think some CHD parents can get wrapped up in their child's health that they simply cannot understand that every parent feels for their child and their health and would give anything to insure their health.

Now I am not naive, I do believe my experience puts me an elite group that only other CHD parents understand. I just don't think we need to be hard on our friends. They have our best interests at heart and if we don't take the time to have an open dialogue you shouldn't assume they know what to do, say or how to behave.

I have been lucky. For the most part everyone I have been in contact with has been great. And if any were offensive at one time so be it. I knew their heart was in the right place even if their approach was not the best. Everyone was respectful. And isn't that all we can really ask for?

She's FIVE!!!

Time to baby proof

Well baby #3 is ALL over the place. He is a crawling fool and leaves his trail of spit up for us to find him. So glad we opted not to replace our carpets yet and instead invested in a carpet cleaner. G brings out that sucker once a month and within 2 hours our carpet looks like a bad 70s shag with orange, green and yellow spots.

When we left for Disney last month P was just starting to sit unassisted. He conquered that while we were gone as well as started to move ever so forward on his hands and knees. Since then he is a master of sitting, crawling and pulling himself up on his knees. He is into EVERYTHING. Nothing is safe. His favorite toy: the hideous vertical blinds in our kitchen. He loves pulling on them. He also got a wonderful report from our first home-bound PT appointment (our one and only). He is in the 90 percentile for gross motor skills and he is officially written off of home PT. We are so thankful. We have OT coming this week and I suspect it will go just as well and all early interventions will cease. What a true blessing.

We have been enjoying much of the last 7 months with P home. We are shocked at how fast time is going with #3. It is amazing. It feels like everyday a new skill is learned. The older two are working with P to get his verbal skills rolling. They repeat every noise he makes and he responds by making a new noise. It makes for loud car rides but I love it. I love that my two oldest want to help P become more verbal.

Speaking of the other two...Ry is growing like a weed. It seems overnight she shot up. She is now as tall as her good friend S. Also she is growing her hair out which has completely changed her appearance. She looks like a big girl. I love her to pieces and can't believe she will be entering kindergarten next year.

E is talking up a storm. He's favorite phrase; No Way or Go Away. He is such an even tempered little boy who generally is a gender neutral player. He loves twirling in his sister's dress up gowns and playing with his trains and matchbox cars. I love how happy he is and his favorite place to go is home. He is not much for running around town and needing to constantly go, go, go as my oldest. He loves being home, playing with his toys or his sister's playdates.

I can't believe the holidays are almost upon us. I have started the shopping but now need to go in overdrive this week to get it done due to G's crazy schedule. I am so looking forward to Christmas as a family of five and that we get to spend it all together at home.

The BEST Parts of Me

Somewhere in the middle

These past 12 months have been extreme. I have never felt the weight of life and how precious it is as much as I have in the past year. This isn't only from my own experiences the last 12 months although there have been a lot: losing my mother-in-law, hubby spending time in the hospital, a diagnosis of a heart defect in my newborn son, losing my father-in-law while waiting for life saving surgery for my son, etc, etc, etc. Just as we would catch our breath some thing else would happen. Then there are the events outside of my family. Amazingly tragic events happening to people I know or know of...
The whole experience got me thinking about the downside of middle-age. Yes this is admitting that I am there, in the middle of what should be my life expectancy. Gone are the care free days of playing, giggling and learning my ABC's. The excitement stemming from getting to be a year older and that much closer to being a big person. The walks down the hallways of high school with friends, passing notes about what you're going to wear to the football game and getting the answers for the quiz for 4th period class. The carelessness of the college campus life bubble of discovering who you are and what you want to be when you grow up.
Nothing I ever imagined as a child, teen or college kid about being a grown up is exactly true. Sure I get to eat ice cream when ever I feel like it and I don't have to listen to my mother but now that I am here I think it would be nice to just go back.
Adulthood has unimaginable highs and incredible lows. The middle of your life you get the immense pleasure of bringing new life in and such pain to see life taken away.
I now understand the mid-life crisis. The want or need to capture your youth, to hold on to the carefree days and it sounds exquisite. However due to life experience there is really no way to go back and grab a hold of it. You know too much.
So here I sit in the middle watching with doe eyes at how precarious life really is...

Cracks

Yesterday was one of those days where the weight of P's first month weighs heavy on my heart. Nothing significant occured yesterday but for some reason my mind and heart went back to the hospital, the walks down the polka dot hallway and the enormousness of it all. It is difficult to shake and sets a thought process in motion that can take a few days to rid. I tend to replay certain events in my mind but most striking is the walk going in to see my son. I am not sure why that is the event that replays in my mind, of me staring down at those gigantic blue polka dots.
Over the last several months during these heavy days, I think about the term "Heart Mom" a lot. I hate labels. I hate having this label. I don't want this label and I don't want my son to have it either. And my reasons for not wanting it really has nothing to do with not embracing his once broken heart or his rocky first month. That I can handle. When I think of the term heart mom I think of all the wonderful moms who have turned their tragedy into something positive; who have paid it forward. That is the weight I am not sure I am able to bare at this time.
A couple of months ago I was introduced to a mom who recently found out her son had a CHD. We chatted on the phone and afterward I felt exhausted and realized I wasn't in the right space to offer support, that in fact I was still grieving my own situation. I felt horrible because I don't think I was a help at all and in fact may have made this mom confused or more frightened. This was never my intent when I got the courage to speak to her. However it made me doubt my ability to one day be a true "Heart Mom".
Since the time I spoke to her the dreaded label has faded and I've realized how I wear the label will be determined by me. The definition I had in my head was incorrect. Parents who have children with CHD are Heart Parents but those among us who offer support, pay it forward and strive to give a voice to this community are Heart Warriors.
I am not a Heart Warrior yet and I am not sure if I will ever be... but I am so very thankful and appreciate of those who have the ability to be one.

6 months

Our littlest had his 6 month well visit today and he is doing great. He weighed in at 16 lbs 3 oz (25%) and was 27 1/2 inches long (75%). He is long and lean but there is no concern for the differences in the percentiles especially since the oldest 2 aren't chunky monkeys themselves.
Everything else checked out well developmentally and he appears on track.

An update of sorts

My head has been swarming with lots of thoughts over the last few months. I took time away from this blog and closed out writing on our Caring Bridge site over 2 months ago. However it wasn't because I didn't have anything to write but more that I felt I should take a break. The time I spent updating Caring Bridge (almost daily when P was in the hospital) took the wind out of my sails.
The last few months I have let my thoughts sing in my head but opted not to put it down as I was still digesting everything that went on in March and April. I have been struggling to find myself and learning how to parent three children. I will admit going from 2 to 3 was much harder than 1 to 2 (at least for me). There are few free moments if any at all.
We have been living quite a crazed sleep deprived life. We are finally pulling in the reins and working on sleep training. P isn't much of a napper but we are working on that as well as keeping him down at night (he is a snuggler...loves to get me up at 1 or 2 am to sleep next to me till morning... SO BAD). And E has been a mess since we returned from vacation in early August. He was in our room that week in NC and just received the memo this week that HE MUST STAY IN HIS BED. It has been tough but I am determined to get everyone squared away in the next few weeks.
Other than sleep, which is currently the #1 priority in my household, we are getting back into the fall routine of preschool, MDO and getting ready for Disney. The two oldest are being whisked away in mid-October to visit Mickey and the Princesses. A much needed break for them and all they have endured the past 6 months. I am truly excited to be able to take them away to the land of make believe. Our littlest won't be going with us. WOW! He will be off to my girlfriend's home being loved on by a 5 year old girl, 3 year old boy and a "Rascol" (their dog which my oldest son LOVES..he will be so jealous of his baby brother). So life is rolling forward for the kids just as it should.

Over the next few posts I will share where my head has been (outside of wishing for more sleep) but for now I am just letting you know I am back and warming up to blogging again.

Clown Night Family vacation 2010

I am so excited that in a week my family will be walking to support the American Heart Association in their annual Start! Heart Walk. We formed a great team, Patrick's Pals with family and friends. This is my last plea for you to join or donate.

New Blog

Life has a way of throwing curve balls at you. G and I got our biggest one the day after our 2nd son was born.

Changes

Lots of changes are starting in the Sharp Household. The biggest one has yet to make its arrival although the anticipation of finding out the gender is about killing me. I spent one evening taking an online test (with all the wives tales) to see if I could at least have an accurate guess. Came up with nothing (54% girl vs 46% a boy). I don't think those old wives could figure this one out unless they had an ultrasound.
I had my first internal earlier this week and I am sitting at 3 cm dilated. I know it doesn't mean much (I was 2 to 3 with E for weeks). My only wish is that my folks make it back in time from their trip. They should... they arrive back here on Monday.
Our first big change happened early this month with my husband sold his SUV on Craigs List in 2 hours. It was crazy and we never thought it would happen in a matter of hours. Guess we should have asked for more money. That said, we started the process to purchase a minivan. We waited the entire month till my color choice finally arrived. I was getting a little freaked but it happened. As of today I am a minivan driving mom. What an adjustment.
Kids are doing well. Ry is loving preschool and asks everyday if she gets to go (even weekends). If a 7 day a week program existed she would be signed up. E has had more exciting changes. We moved him into a big boy bed at the end of January in his sister's room. The first few weeks were a bit difficult with the nap but he has adjusted (as we all have adjusted to making it quiet so he doesn't think he is missing something). Ry has been a great big sister in the whole matter and due to her brother's arrival in her room she has been sleeping in her bed every night. That has been a huge blessing as I was getting a bit tired of sharing my bed as my belly was expanding. I am a woman who needs space and a snoring 4 year old who doesn't roll over to stop was infringing on my space. I know there will come a point when I look back on her need to sleep with her mama and will miss it. Just not while I am 9 months pregnant!!
The end of this month has been eventful. If you follow on FB you know exactly what I am talking about... hubby is doing a bit better (at least he isn't in the hospital) but he is still having some health issues that remain unanswered. We are just taking it one day at a time and hoping it is all infection related.
I am excited for March to come. My folks return, my baby boy turns 2 and we will have a new addition. All good things.

Cupids

Here are my two cupids who filled my cup of love today while their daddy was flying back to the states from a 2 day stay in Bermuda!

Attempt #2

Our friends, Tyler and Melissa have an annual Christmas party with the most authentic Santa I have seen. He is a great guy and tried luring E in and got close to winning him over... maybe next year!

Ry did it!

Trying for the kids together. No such luck!

A peace offering - candy cane wins!

Didn't mind the jolly man helping him unwrap his present!


Going in for the kill... E ran away just after I got this shot.